Lucy has a syndrome called Bardet-Biedl (BBS) which causes blindness, obesity and other health issues. Lucy is one of thousands of children who's families are fighting to find cures for this debilitating syndrome. The goal of the "I Love Lucy Project" is to work with doctors and scientists to stop the effects of BBS before it's too late.

Wednesday, April 6, 2011

new article

I just came across this interesting article. It makes me happy more research is coming along for kids with BBS, but I know we have a LONG way to go. I'm trying to be patient.